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Iris Upon A Star

Iris Upon A Star

Tag Archives: Anais Nin

Reflections

28 Sunday Jun 2015

Posted by LRH in Uncategorized

≈ 5 Comments

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Anais Nin, Doernbecher Children's Hospital, perspective, Reflection

SolanaIrispraying

We don’t see things as they are, we see them as we are.

The contrast in scenes from 2 years ago, to today, takes my breath away. No one can fully prepare to see their child go through a traumatic surgery, yet I wouldn’t trade the experience for anything. It has given me greater perspective, and also shaped both of my daughters .. giving them a view of life, love, family, and friendship, far beyond their years.

Solana’s love for her little sister makes my heart swell. She was nervous for Iris, but never shied away from supporting her. Instead, she visited Iris in the hospital each day, gently stroking her hair, singing sweetly to her, taking her for rides in a red wagon, celebrating victories, and offering encouragement every step of the way.

IrisICU

Iris, at 6 years of age, fully understands that life is a gift. She’s seizing it with an almost unfathomable vigor. She knows she has physical limitations, but she pushes those limits daily .. hiking, swimming, dancing ballet, and showing the world that she is a warrior in every sense of the word.

IrisHiking

My journey with my daughters has reshaped nearly everything I thought I knew about life. I’ve found a deeper strength in myself, a greater acceptance of myself, and a love that transcends fear, challenges, and loss.

This amazing journey has reaffirmed what I hope to teach my girls: To fight for what they believe in, and respect others doing the same. Use their voices .. especially on behalf of those who can’t. Trust their faith, and don’t be afraid to lean on it. Embrace and explore their intellectual curiosity. Never forget that love is all around them. Focus less on life’s limitless possibilities, and more on the simple thought that there is so much life .. in life.

SolanaMommyIrisPalosVerdes

We wish you a wonderful summer! Love and hugs, The Hickey Girls

Be Brave

28 Saturday Jun 2014

Posted by LRH in Uncategorized

≈ 6 Comments

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Anais Nin, Dr. Michael Rutter, Dr. Stephen Langley, Iris, pulmonary artery sling, tracheal stenosis

Early this morning I found myself sitting on the edge of Iris’ bed. She was sleeping peacefully .. probably dreaming about our recent trip to Disneyland and Palos Verdes. As I stared at her, my thoughts cycled through a mental scrapbook of the past year.

One year ago today, Iris underwent open heart surgery and tracheal reconstruction. Every minute of that day is as vivid as if it were happening again in real-time. I remember kissing Solana goodbye as we left for the hospital, and she excitedly prepared to head to camp with our nanny. I can see the faces of the people on the tram that morning as they headed up the hill to work. They looked tired, and curious about the little girl joining them that morning. I can feel the tram gently swaying back and forth .. I actually paced my breathing to that rhythm. I can hear the voices of Dr. Langley and Dr. Rutter. Who would’ve thought that a doctor from England (Langley), and a doctor from New Zealand (Rutter) would be operating on a little girl from China .. in Portland. They calmly, and confidently, answered my last-minute questions. Between the range of emotions, that I had little control over, and my garbled speech, I’m surprised they understood a word that I said. But they did, and they continued to reassure me.

I remember Iris’ face. So innocent and unaffected by what was happening around her. I felt guilty. Guilty that I was unable to explain to her what was about to happen. Guilty that her pure, sweet, little body was about to undergo a dramatic incision, and that the next several days, weeks, and months would present challenges no four-year-old should experience.

But along with that guilt, was the awareness of Iris’ brave spirit. Every step of the way throughout this journey, she has shown me, and everyone around her, what it means to be brave in the face of the unknown. June 28, 2013 was no different. And each day since .. Iris has continued to demonstrate how to live a brave life.

Life shrinks or expands in proportion to one’s courage.

I left Iris’ room this morning, and went to meditate. It’s a practice I’ve done for many years as a way to center myself as I begin my day .. and as I’ve done for the past year, I finished my meditation with these two words:

Be brave.

Here’s Iris last week at Disneyland: (with our motto on her shirt)

CAsummer2014 148

.. and the three of us in Palos Verdes:

CAsummer2014 398 (3)

Have a wonderful summer!

Love and Hugs,
The Hickey Girls

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