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Iris Upon A Star

Tag Archives: Dr. Henry Milczuk

Giving Thanks

28 Thursday Nov 2013

Posted by LRH in Uncategorized

≈ 2 Comments

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Doernbecher Children's Hospital, Dr. Henry Milczuk, Dr. Laurie Armsby, Dr. Michael Rutter, Dr. Stephen Langley

Today marks the 5 month anniversary of Iris’ surgery and the 10 month anniversary of the day she was united with Solana and I. It’s been a crazy whirlwind but I wouldn’t trade these 10 months for anything.

As I count my blessings today, I’m thankful for the love and support of family and friends, His guidance through this challenging and remarkable year, Solana’s compassionate and loving soul, the amazing doctors (Stephen Langley, Michael Rutter – Cincinnati Children’s, Henry Milczuk and Laurie Armsby) who did what they do best and, in the process, gave Iris not a new life … but a better life. And of course, Iris … my little warrior.

We wish you all a wonderful Thanksgiving.

Here’s a glimpse into our journey over the past 10 months:

https://vimeo.com/80636716

4 Weeks

26 Friday Jul 2013

Posted by LRH in Uncategorized

≈ 4 Comments

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Doernbecher, Dr. Henry Milczuk, Dr. Kelly Ryan, Dr. Laurie Armsby, Dr. Michael Rutter, Dr. Stephen Langley

It’s hard to believe that 4 weeks ago I was sitting with Iris in ICU as she was waking from surgery.

The day began with a tram ride up to Doernbecher at 5:30am. There were only 4 other people on the tram with us that morning and they all worked at Doernbecher/OHSU. They looked adoringly at Iris, with no clue that this little girl was on her way up the hill to have open heart surgery.

We checked in at the lobby, received our bracelets and proceeded up to the surgery waiting area. It was empty and quiet. So quiet. Iris was called back to the surgery prep area within minutes and that began a procession of nurses and doctors stopping by to get her ready. Dr. Langley and Dr. Rutter stopped by to say hello and address last minute questions. And then Dr. Kelly Ryan came by. Kelly is an anesthesiologist and she comes highly recommended. She explained that her primary job is to ensure that Iris is comfortable and safe throughout surgery. Kelly discussed the medications she’d be using and gave me a good overview of how they impact the body. She then asked if I had any questions or concerns. I responded, “just keep her comfortable and safe.” That’s all I wanted.

When your child is taken back to surgery at Doernbecher, you are allowed to walk with them to the “orange line.” Kelly walked with us. I remember approaching that line and feeling my knees buckle beneath me. It is a moment, as a parent, of complete vulnerability. Handing your child, and your trust, over to another person. I gave Iris a hug and told her that I love her. I then glanced up at Kelly and, without saying a word, she looked into my eyes and ever so slightly nodded her head. A gesture that was, at once, both subtle and powerful. All I could see was compassion and confidence. Kelly knew exactly what I was feeling, and the look in her eyes provided me with more comfort than any words could.

I turned to walk away. The walk back seemed like a mile. Tears streaming down my cheeks. Legs failing me. It was the complete loss of control over my emotions. I walked into the waiting room sobbing loudly. My sister and niece immediately embraced me and we started walking down the hall so I could catch my breath.

When I finally did, I pictured Kelly Ryan’s face. And I knew … Iris would be comfortable. And safe.

I’m thankful every day for Iris’ amazing team: Dr. Stephen Langley, Dr. Micheal Rutter, Dr. Henry Milczuk, Dr. Laurie Armsby, and Dr. Kelly Ryan.

Iris continues to improve. She saw Dr. Armsby this week and received another good report. Her chest x-ray looks great. Her ultrasound is scheduled for the end of August and her next procedure, to potentially put a stent in her pulmonary artery, will be in a few months.

Until then .. we’re enjoying the sunshine, and counting our blessings at every opportunity.

This is Iris today .. showing me her “heart”:

Irisheart1

Home

03 Wednesday Jul 2013

Posted by LRH in Uncategorized

≈ 7 Comments

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Doernbecher Children's Hospital, Dr. Henry Milczuk, Dr. Laurie Armsby, Dr. Michael Rutter, Dr. Stephen Langley

It’s difficult to find any words right now because this moment is truly unbelievable.

Iris was discharged from Doernbecher today and is home. Yes, 5 days after undergoing MAJOR surgery involving her heart and airway .. she is home.

Iris has a long recovery in front of her, but her surgery was successful and she’s doing amazingly well. We came home with a handful of prescriptions, and she needs to wear a humidified air mask for a few weeks while her trachea is healing. There will be plenty of follow-up appointments and potentially another procedure in a few months .. but she’s well on the road to recovery.

I have so much gratitude for the team that made this day possible: Dr. Stephen Langley, Dr. Michael Rutter, Dr. Henry Milczuk and Dr. Laurie Armsby. They are brilliant doctors, and incredibly compassionate human beings. My daughter’s health .. and honestly, her life .. could not have been in better hands. Between their expertise, His guidance, and Iris’ brave spirit .. she will have the chance to run, play, dance and explore all of life’s wonder.

Here’s my tiny, but mighty, daughter .. ready to go home!
DCH2013-9

Here We Go

21 Friday Jun 2013

Posted by LRH in Uncategorized

≈ 3 Comments

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Doernbecher, Dr. Henry Milczuk, Dr. Michael Rutter, Dr. Stephen Langley

Here we go.

Iris’ surgery is scheduled for next week at Doernbecher.  Dr. Rutter is coming out from Cincinnati to perform her airway reconstruction, along with Dr. Milczuk, and Dr. Langley will repair her heart.  They estimate she will be in the hospital 10 days to two weeks and then we’ll return home for the remainder of her recovery.

So many thoughts and emotions run through me each day, but mostly I find myself feeling thankful.  Thankful to Iris’ biological parents.  Thankful for the day Iris came into our lives.  Thankful for the abundant joy my daughters fill my heart with.  Thankful for Solana’s compassion throughout this journey.  Thankful for the wonderful doctors that care for Iris.  Thankful for the support of family and friends.  Thankful for the comfort I have found in my faith.

So we enter the biggest challenge of our lives … and I am reminded;  kites rise highest against the wind.

Soar my little warrior … soar.

Thank you for your continued prayers.

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